Resources For Patients

Below you will find links to additional resources that be useful if you have systemic mastocytosis (SM) or care for someone who does. You can share these resources with your friends, family and healthcare providers to help them learn more about SM and become involved in the SM community.*

Find a Physician or Center that Specializes in SM

Connect with People Living with Mastocytosis

Learn More about How SM Is Diagnosed

These links provide information about a blood test to measure tryptase levels, a substance produced by mast cells

These links provide information about a genetic test to identify a KIT D816V mutation, which is believed to cause SM in almost all patients

Learn More about Treatments for SM

Learn More about Participating in Clinical Trials

* These linked websites are not under our control, and we are not responsible for the content available on any other websites linked to this website. These links do not imply our endorsement of material on any other website, and we disclaim all liability with regard to your access to such linked websites. Please the Terms & Conditions for more information.