Privacy Policy – Effective November 25, 2015

Blueprint Medicines provides the “Together with Systemic Mastocytosis” website (this “website”) as a source of general information about systemic mastocytosis.

Blueprint Medicines recognizes the importance of protecting the privacy of information it may receive from visitors to this website. This privacy policy (this “Privacy Policy”) describes the information we collect from visitors to this website, how we may use and with whom we may share that information, the safeguards we use to protect such information and the choices you may make with respect to your personal information.

You may visit this website without telling us anything about yourself, and this website only collects such technical information as disclosed in this Privacy Policy. If you contact us and choose to provide personally identifiable information or other personal data, such as your name, address, telephone number or email address, we will utilize it to respond to your inquiry. By voluntarily providing us with your personal data, you are consenting to our use of it in accordance with this Privacy Policy.

We do not collect or maintain personally identifiable information for resale purposes, or share your information with any other company or organization, except to the extent such other company or organization is acting as our agent for processing or mailing purposes to assist us in providing information that you have requested. In addition, we will not send unsolicited messages to users of this website who indicate that they do not wish to receive such messages. If you do not wish to receive unsolicited email messages from us, please contact us at

Notification of Changes to This Policy

Blueprint Medicines is continually improving and adding new functionality and features to this website. Because of these ongoing changes, changes in the law and the changing nature of technology, Blueprint Medicines’ data practices will change from time to time. Accordingly, we reserve the right to update or modify this Privacy Policy at any time and from time to time without prior notice. If and when our data practices change for this website, Blueprint Medicines will post the changes on this page to notify you of the changes. Such changes to the Privacy Policy will become effective when posted. Unless stated otherwise, our current Privacy Notice applies to all personal data that we have about you. We stand behind the promises we make, however, and will not materially change our policies and practices to make them less protective of personal data collected in the past without the consent of effected individuals. Your continued use of this website after any changes or revisions to this Privacy Policy shall indicate your agreement with the terms of such revised Privacy Policy. We encourage you to check this page frequently by clicking on the Privacy Policy link on any page of this website.

Personal Data Collected Through this Website

The only personal data Blueprint Medicines currently collects through this website is the information you send to us when you contact Blueprint Medicines with your questions and comments through the Contact Us page on this website. DO NOT SEND INFORMATION RELATING TO MEDICAL CONDITIONS OR OTHER SPECIFIC PERSONAL HEALTH INFORMATION VIA EMAIL OR THIS WEBSITE. BLUEPRINT MEDICINES CANNOT BE RESPONSIBLE FOR PERSONAL HEALTH INFORMATION SENT THROUGH EMAIL OR THIS WEBSITE.  Please keep this in mind when disclosing any personal data to Blueprint Medicines via email or this website.

Personal Data Collected Through the Mast Cell Connect Registry

This website contains links to and information regarding the Mast Cell Connect Registry. In order to participate in the Mast Cell Connect Registry, individuals execute various forms, including an informed consent. The use and disclosure of any information collected from participants on the Mast Cell Connect Registry is governed by those forms and the privacy policy and terms of use of the Mast Cell Connect Registry. We encourage you to read those materials before providing any personal information on the Mast Cell Connect Registry.

Children’s Privacy

We are committed to protecting the privacy of children.  This website is intended for users over the age of 18, and we do not knowingly collect personal information from children under the age of 13.  You should be aware that this website is not intended for, or designed to attract, children under the age of 13.  No information should be submitted to Blueprint Medicines through this website by visitors who are less than 13 years of age.  If a child has provided us with personally identifiable information, the parent or guardian of the child may contact us, and we will take steps to remove such information.

Social Media

Generally, online social media resources are interactive tools that enable you to collaborate and share information with others. Social media resources include but are not limited to social networks, discussion boards, bulletin boards, blogs, wikis and referral functions to share website content and tools with others. Blueprint Medicines may collect personal information from you to enable you to use online social media resources we may occasionally offer to you on this website. Blueprint Medicines may also enable you to use these social media resources to post or share personal information with others. When using social media resources, you should take into careful consideration what information about yourself you choose to share with others and review the privacy policies and terms of use of those social media resources.


Please note that any information you send to Blueprint Medicines via email or other Internet transmission is not completely secure.  We take reasonable steps to protect the personal information provided via this website from loss, misuse and unauthorized access or disclosure, however, no Internet or e-mail transmission is ever fully secure or error free.. Due to the nature of the Internet, there is a possibility that unsecured (unencrypted) email could be intercepted and read by third parties. Blueprint Medicines assumes no responsibility for interception of confidential information (including in a resume or CV) that you send in an unsecured (unencrypted) email message or other Internet transmission to and from this website.  Therefore, you should take special care in deciding what information you send to us via e-mail or other Internet transmission.

Links to Other Websites

This Privacy Policy applies only to This website contains links to Blueprint Medicines’ website, as well as other websites that are not owned or controlled by Blueprint Medicines, including the website for the Mast Cell Connect Registry. Please be aware that we are not responsible for the privacy policies of such other websites or how these websites operate or treat your personal information. We encourage you to be aware when you leave and to read the privacy policies and terms of use of the Blueprint Medicines’ website, the website for the Mast Cell Connect Registry and each and every third party website that collects personally identifiable information.

About Certain Content for this Website

In our effort to bring you up-to-date and accurate product and resource information related to systemic mastocytosis, we use various expert sources and studies to develop the content for this website. As a result, you may find differences in statistics, percentages or other information across various articles or resources made available through this website or by third parties.

Legal Requirements

We reserve the right to disclose your personal information (i) as required by law, court order, legal process  or government or regulatory  requirement or (ii)  to protect the safety, rights, or property of the public or Blueprint Medicines.

Other Terms and Conditions

Your access to and use of this website is subject to the Terms of Use described elsewhere on this website. In addition, any content or information (including text, images, video and audio but excluding personally identifiable information) submitted by users of this website to us, whether by e-mail, directly through this website or otherwise, is subject to the Terms of Use described elsewhere on this website.

Questions About Our Privacy Policy

If you have any questions about this Privacy Policy or concerns about the way Blueprint Medicines processes your personal data, please contact us.

Contact Us

Blueprint Medicines

38 Sidney Street, Suite 200

Cambridge, MA 02139

Telephone: 617-374-7580