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Mastocytosis Patient Registry Overview

Mast Cell Connect is a patient registry to advance understanding of mastocytosis and help speed the development of new therapies that improve patients’ lives. By providing researchers with a database of detailed medical information about people with a specific disease, registries have proven a valuable tool in better understanding rare diseases like mastocytosis. Share your experiences, get data and insights from the Mast Cell Connect registry, and find out about clinical trials.

Why Join?

  • Learn from other patients’ experiences

    By participating, you will gain access to data and insights gleaned from other patients’ responses that may be useful in better understanding your own disease.

  • Find out about clinical trials and other research studies

    You can sign up to be notified about clinical trials and other research studies that you may be eligible for based on the information you enter into the registry.

  • Advance research and speed development of new treatments

    By improving our understanding of mastocytosis and its impact on patients over time, you can help spur the development of new treatments.